Janet Gunderson taught for 20 years but in 1999 she had to go on long term disability due to a diagnosis of vasculitis. Janet and her husband live in rural Saskatchewan. Since leaving teaching she has volunteered with several groups.
Janet has been a volunteer with The Arthritis Society for many years. For the last seven years she has been on the steering committee with The Canadian Arthritis Patient Alliance. Janet also spent five years as a patient on the Consumer Advisory Council with The Canadian Arthritis Network. She has been a volunteer with the Cochrane Collaboration for many years.
Janet is a Patient Family Advisor with The Saskatchewan Centre for Patient Oriented Research Patient and Family Advisor Council. She is also a patient partner with the SPOR Chronic Pain Network.
Janet is also a patient representative with the Canadian Institute of Health Research Drug safety and Effectiveness Network.
Rita Wiebe comes to us, as a Patient Partner from a small city in Northern BC. Prince George BC is what she has called home for her entire life. With a background in “real-life, citizen centred” outreach, brings a Patient partner lens to rural communities and cities, so prevalent in our great Nation.
Her post secondary education also includes many facets of communication, social and media relations.
She is no stranger to writing content for blogs, media releases and websites and especially enjoys being able to apply that “plain language” humanistic approach!
She has been a Patient Partner in various capacities for the past decade, starting with Patient Voices Network in BC. She has held engagements with the BC Cancer Agency, has worked on a couple engagements with a cancer researcher from Eastern Canada, is part of the BC Support Unit Patient Council and others.
Rita became serious about the “Citizen approach” to Patient Engagement about two years ago, after the death of her son from pancreatic cancer. The passing was with assistance from the MAiD (Medical Assistance in Dying) program. At that time, it was within the first 1000 cases since legalization in Canada.
Her journey as a team caregiver created a painful awareness of the need for a more humanizing lens for patients and families, which continues to fuel her passion. Her other passion lies with the 45-64 age demographic in terms of living a purposeful, engaged life for as long as possible. She reminds us that the ages of 45-64 is the best time to intentionally unlearn bad habits and replace with healthier ones.
This preventative, holistic (body, mind & spirit) approach has gained more traction since COVID. The healthcare decision makers seem to recognize the importance of going into the 65+ years with less health concerns. From the Citizen (patient) perspective, she knows the importance of the “whole person approach” to wellness!
Jackie Mann is a health system leader, who has over thirty years of healthcare experience. She has held a number of positions throughout acute care, including staff nurse, manager, and director. Until 2018, she served as Vice President with accountabilities for acute care, laboratory services, pharmacy services and diagnostic imaging services across the Saskatoon Health Region. Jackie was also the executive lead for the planning and construction of the Children’s Hospital of Saskatchewan, including the application of the 3P lean methodology. Jackie is a certified Lean Leader. She served on the Senior Leadership team in the Saskatoon Health Region for eleven years. Patient and family centred care and patient safety have been two key focuses for Jackie throughout her career.
In September 2018, Jackie took on a new role, as the Executive Director for the Saskatchewan Centre for Patient-Oriented Research, where she leads a team and serves a group of eight partners across the province, in their pursuit of patient-oriented research.
Jackie is a Registered Nurse, with a Bachelor of Science in Nursing and Master of Business Administration from the University of Saskatchewan, she is also a surveyor with Accreditation Canada.
Davina Banner is an Associate Professor in the School of Nursing at the University of Northern British Columbia and a cardiovascular and rural health researcher, educator, and palliative care nurse. Davina leads an interdisciplinary program of research and has a special interest in integrated knowledge translation and patient engagement. Davina is a mother of three, fitness enthusiast, and eternal optimist.
Cathy Telfer is a retired educator from Southwestern Ontario. She has been a patient partner with the Canadian Task Force on Preventative Health Care since 2015 and with the Knowledge Translation Program, Li Ka Shing Knowledge Institute, St. Michael’s Hospital since 2017. She completed the Partners in Research (PiR) Course in 2017 and served as Course Coach for the second cohort. Since 2018, she is a member of the Erie St Clair LHIN PFAC for the Windsor Regional Cancer Centre. Most recently, Cathy was involved in the development of Mapping Patient Engagement in Research Activities in Organizations Across Ontario – to catalogue organizations in Ontario that currently have activities and policies in patient engagement, with a grant from Ontario SPOR SUPPORT Unit (OSSU). Her participation in the development of online training modules for researchers and patients/caregivers who partner in research; Institute for Better Health – Trillium Health Partners, Mississauga, ON has been completed and will be released in the near future. Cathy is the author of Patient Perspective: Values & Preferences – Published in CFP – Canadian Family Physician, January 2018 and also writes a monthly “Concerning Cancer” column for a number of community newspapers.
Cathy enjoys volunteering in her community and looks forward to her involvement in the Partnerships Committee of the SPOR Evidence Alliance.
As a clinician-scientist, Fidel Vila-Rodriguez has a strong interest in conducting translational research that bridges our understanding on the neurobiology of psychiatric disorders with the clinical applications of this knowledge. His clinical practice is actively focused in those most severely afflicted by such conditions, and his research interests are directed at finding novel therapeutic interventions within Non-Invasive Neurostimulation Therapies (NINETs) that can help mitigate the suffering of those with severe and refractory forms of psychosis and depression. Fidel strongly believe that understanding NINETs’ mechanism(s) of action is a critical step towards translating research knowledge to clinical practice. More importantly, translating that knowledge to clinical practice will have a direct, immediate, and positive impact on the lives of those who struggle and suffer the most devastating forms of mental illness and their families.
As President & CEO of the Michael Smith Foundation for Health Research (MSFHR), Bev is focused on the funding, production and uptake of health research and health care-related evidence in British Columbia (BC), Canada. Since joining MSFHR in 2010, Bev has supported the Foundation through a period of organizational redesign, established MSFHR as a leader in knowledge translation, and supported the launch of a new suite of funding programs focused on developing, retaining, and recruiting BC health research talent. An active and respected member of the health research community, Bev’s research interests include knowledge translation, discourse analysis, health communication, risk communication, and public involvement in health research.
Dr. Jennifer Walker is a health services researcher and epidemiologist who holds a Canada Research Chair in Indigenous Health at Laurentian University in Sudbury, Ontario. Dr. Walker centralizes her work on principles of 1) Indigenous data sovereignty and 2) Indigenous health and health services data. Accordingly, the work she leads and partners-on is community-grounded and informed by the priorities and needs of Indigenous populations and their health organizations, particularly as these needs relate to frailty, healthy aging, and dementia. Dr. Walker’s program aims to support communities and their health organizations to access and understand their health data in order to inform their health services and programs.
Dr. Janet Jull is Assistant Professor with the Rehabilitation and Health System Leadership program at Queen’s University Kingston, Ontario. While working as a health care provider, Dr. Jull was concerned by the ways in which health systems failed to meet the needs of the people it was meant to benefit. Dr. Jull now works in partnerships with Inuit, Metis and First Nations communities in research studies aimed at enhancing their opportunities for participation in their health decisions through the development of shared decision making tools and approaches. As well, Dr. Jull is involved in the development of guidance on how to conduct research that reflects, advances, and meets expectations for ethical, collaborative, and culturally supportive engagement with Inuit, Métis and First Nations individuals and communities.
Charlene Soobiah is a PhD Candidate at the Institute for Health Policy, Management & Evaluation at the University of Toronto and a graduate student in the Knowledge Translation Program at St. Michael’s Hospital. Her dissertation focuses on evaluating the effectiveness of geriatrician-led care models and seeks to identify optimal care models to improve health outcomes. Charlene has a background in systematic reviews and knowledge translation, and has contributed to over 15 systematic reviews and several papers on knowledge synthesis methods. Charlene is focused on finding ways to engage patients, clinicians and policymakers in systematic review processes to optimize uptake of evidence into clinical practice.