Anti-Racism in Patient/Public Partnership

Approaches to Anti-Racism in Patient/Public Partnership in Research: A Scoping Review

Project Status:Complete

Knowledge User(s)

Ontario SPOR SUPPORT Unit (OSSU)

Project Trainee(s)

Heather C. Worthington, Thalia Otamendi, Julia Mucha, Smruthi Ramachandran, Marisa Lin

Funding Source(s)

  • Canadian Institutes of Health Research (CIHR) through the Strategy for Patient-Oriented Research (SPOR) Evidence Alliance
  • Ontario Strategy for Patient-Oriented Research (SPOR) SUPPORT Unit (OSSU)

Project Objectives

To synthesize the evidence on approaches, strategies and tools that promote anti-racism in patient/public-researcher partnerships.

Research Approach

Scoping Review

Project Lead(s)

Annette McKinnon

Position: Patient Partner, Arthritis Research Canada
Email: a.mckinnon@sympatico.ca

Annette McKinnon is an active and engaged patient and a member of the Steering Committee of the Canadian Arthritis Patient Alliance (CAPA), Sjogrens Canada, and the Arthritis Patient Advisory Board of Arthritis Research Canada. Starting with a blog and a social media presence (@anetto), she has become involved with research teams and is a founding member of the Patient Advisors Network, a community of practice for patient and family caregiver advisors. Her term as a public member of the Council of the College of Occupational Therapists of Ontario ended in 2019, and she is now a public advisor on the committee revising the upcoming CAOT textbook, Enabling Occupation III.

Annette McKinnon

Patient Partner, Arthritis Research Canada

Annette McKinnon is an active and engaged patient and a...

Hilary Edelstein

Position: Ontario Strategy for Patient Oriented Research Support Unit, Assistant Director

Hilary Edelstein

Ontario Strategy for Patient Oriented Research Support Unit, Assistant Director

OSSU Patient Partner

Position: Patient Partner

OSSU Patient Partner

Patient Partner

Project Outputs

Infographic