Patient and Family Caregiver Engagement in Healthcare Decision-Making
Themes for Evaluating the Quality of Initiatives to Engage Patients and Family Caregivers in Decision-Making in Healthcare Systems: A Scoping Review
Project Status:Complete
Knowledge User(s)
British Columbia Ministry of Health
Patient/Public Partner(s)
Andrew Koster, Janet McLean, Vikram Bubber, Allison L. Kooijman
Project Trainee(s)
Maryam Dehnadi, Michelle Lui, Clayon Hamilton
Collaborator(s)
Elizabeth Snow, Nancy Clark
Funding Source(s)
- British Columbia Ministry of Health
- Canadian Institutes of Health Research (CIHR) through the Strategy for Patient-Oriented Research (SPOR) Evidence Alliance
Project Objectives
To identify key elements for defining the quality of patient and family caregiver engagement in decision-making across the engagement domains (individual, community/organisation, system) of healthcare systems.
Research Approach
Scoping Review
Project Lead(s)
Clayon Hamilton
Simon Fraser University
 Linda LiDr. Linda Li is Professor and Harold Robinson/Arthritis Society Chair in Arthritic Diseases at the Department of Physical Therapy, University of British Columbia and holds a Canada Research Chair in Patient-oriented Knowledge Translation. She is also a senior scientist at Arthritis Research Canada where she leads the Arthritis & Implementation Science Program (https://arthritis.rehab.med.ubc.ca/). Her research focuses on the integration of wearables and apps to support health professionals in promoting physical activity and chronic disease self-management. Her work in implementation science includes studying strategies for engaging people with lived experiences in the research process. Dr. Li is a recipient of the American College of Rheumatology – Association of Rheumatology Professionals (ARP) Distinguished Scholar Award (2015) and the ARP Distinguished Educator Award (2022), recognizing her leadership in both arthritis research and education. In 2019, she was inducted as Fellow of the Canadian Academy of Health Sciences. Linda LiUniversity of British Columbia, Arthritis Research Canada, BC SUPPORT UnitDr. Linda Li is Professor and Harold Robinson/Arthritis Society Chair... |