Patient and Family Caregiver Engagement in Healthcare Decision-Making
Themes for Evaluating the Quality of Initiatives to Engage Patients and Family Caregivers in Decision-Making in Healthcare Systems: A Scoping Review
Project Status:Complete
Knowledge User(s)
British Columbia Ministry of Health
Patient/Public Partner(s)
Andrew Koster, Janet McLean, Vikram Bubber, Allison L. Kooijman
Project Trainee(s)
Maryam Dehnadi, Michelle Lui, Clayon Hamilton
Collaborator(s)
Elizabeth Snow, Nancy Clark
Funding Source(s)
- British Columbia Ministry of Health
- Canadian Institutes of Health Research (CIHR) through the Strategy for Patient-Oriented Research (SPOR) Evidence Alliance
Project Objectives
To identify key elements for defining the quality of patient and family caregiver engagement in decision-making across the engagement domains (individual, community/organisation, system) of healthcare systems.
Research Approach
Scoping Review
Project Lead(s)
 Linda LiDr. Linda Li is Professor and Harold Robinson/Arthritis Society Chair at the Department of Physical Therapy, University of British Columbia, and Senior Scientist at Arthritis Research Canada. She holds a Canada Research Chair in Patient-oriented Knowledge Translation. Dr. Li’s research centers on improving the care for people with arthritis and supporting patient self-care. Her work focuses on the integration of online, mobile, and wearable tools in health care. Examples include the use of interactive decision aids for improving communication between patients and health professionals, and the use of wearables and apps to promote a balance of activity, rest and sleep in people with arthritis. Dr. Li’s work in knowledge translation and implementation science has led to a new line of studies on the benefits of engaging patients and the public in the research process. Linda LiUniversity of British Columbia, Arthritis Research Canada, BC SUPPORT UnitDr. Linda Li is Professor and Harold Robinson/Arthritis Society Chair... |