Peer Support for Families of People with Severe Neuro-Cognitive Disorders
Peer Support for Families of People with Severe Neuro-Cognitive Disorders
Project Status:In progress
Knowledge User(s)
Patient and Public Partner
Collaborator(s)
Association québécoise pour la réadaptation psychosociale (AQRP)
Funding Source(s)
- Canadian Institutes of Health Research (CIHR) through the Strategy for Patient-Oriented Research (SPOR) Evidence Alliance
Project Objectives
To identify the effects of peer support programs, compared to usual care or alternate interventions, for families and other informal caregivers of individuals suffering from a severe neuro-cognitive disorder.
Research Approach
Systematic Review
Project Lead(s)
Annette Robyns
Annette has been involved in basic education in Belgium for over 25 years; she even worked for the Cabinet of the Ministry of Health. In her early years, she participated in the well-being of mothers by helping them in various ways and thus acquired a fairly developed social sense. Annette was particularly involved in education and health, although she also looked at other areas such as preparation for free movement in Europe, particularly in relation to poverty, transport, agriculture , etc. She has personal experience as a family member and caregiver of someone with Alzheimer’s disease, which led her to question the lack of peer support programs in geriatric care. Annette is very interested in finding strategies to support caregivers.
Annie LeBlanc
Annie LeBlanc is a clinical epidemiologist, Associate Professor in the Department of Family and Emergency Medicine, Faculty of Medicine, Laval University, Investigator in the Research Center of the Quebec Institute of Primary Healthcare and Social Services, Quebec, Affiliate Investigator, Knowledge and Evaluation Research Unit, Mayo Clinic, USA, and Interim Director, Capacity Building & Professional Development Core, Strategy for Patient Oriented Research (SPOR) Quebec SUPPORT Unit, Quebec.
Dr. LeBlanc’s research centers around the translation of comparative effectiveness research into practice through the design, evaluation, implementation, and sustainability of patient-centered interventions and their impact on patient important outcomes. She lives in Quebec City with her husband and two children.
Maxime Sasseville
Maxime Sasseville is an adjunct professor in nursing sciences at Université Laval and researcher at the VITAM research centre in Québec, Canada. He has a PhD in health sciences research from Université de Sherbrooke and a postdoc from Université Laval in digital measurement and interventions. He has obtained multiple prizes and recognition for the quality of his knowledge translation products and implications. He is part of multiple research teams and endeavors for his skills and expertise in clinical measurement and evaluation, digital health interventions and applied AI to health interventions. He is a TUTOR-PHC alumni from 2015-2016. His research interest focus on patient-reported outcomes, digital implementation of outcome measures, psychometrics and multimorbidity.
Project Outputs
In Progress