Subsequent to a 3 year term at a national accounting firm, JoAnne worked as an analyst in the public/private sector. The diagnosis of her child’s rare disorder led to a career pivot; doing so allowed for the time to engage with similarly diagnosed families and to watch (painfully slow) scientific discovery unfold over the years.
Her interest in research brought her to joining a Research Network in 2017. This was timely; opportunities for patient engagement were becoming more apparent.
To further her capacity, she pursued training through St. Michael’s Hospital KT Program PIR Course, McMaster University-KBHN FER Course, and other Patient and Public Research Partnership offerings.
Recent and on-going activities are diverse. These include providing the patient perspective at various stages of the research process; Beta tester for PORCCH; reviewing lay summaries; initiating a newsletter for members of PAN (Patient Advisors Network); serving on a Grant Review panel, on a Network KT Committee , on a project PFAC / RCT liaison; serving as a patient –partner on a Global database encompassing 2 rare diseases as well as on TACC (Transforming Autism Care Consortium); serving as member of MNI/H (Montreal Neurological Institute/Hospital) Patients Committee.
To keep inspired, she enjoys the manageable bites that “Behavioural Neuroscience Daily” brings. When interest is piqued but expertise lacking, she doesn’t hesitate to reach out to her designated champions of POR at academic and research institutions with questions or queries.
Paramount to JoAnne is patient partnership in helping set Canadian research priorities. To this end, she believes in academic persistence; that knowledge is a driver of empowerment and resilience.