Patient Portals for Individuals with a Cancer Diagnosis

Patient Portals for Individuals with a Cancer Diagnosis: A Scoping Review Co-Led by a Patient Partner

Project Status:In progress

Knowledge User(s)

Patient and Public Partner

Funding Source(s)

  • Canadian Institutes of Health Research (CIHR) through the Strategy for Patient-Oriented Research (SPOR) Evidence Alliance

Project Objectives

To portray the characteristics of cancer patient portals and their effects on health outcomes and examine equity, diversity, and inclusion by identifying which diverse groups participated in interventions studies (primary studies) and which diverse groups are less represented.

Research Approach

Scoping Review

Project Lead(s)

Steven Ouellet

Position: Patient Partner

After completing two bachelor’s degrees (in philosophy and industrial relations), Steven pursued graduate studies at Université Laval and completed a PhD in 2016. As part of his thesis, which was based on a longitudinal study, he studied the evolution of nurses’ working and employment conditions (their well-being at work) in critical care units. Having been diagnosed with cancer in 2019,  he experiences the burden of dealing with many appointments and administrative tasks. Interested in the impact of digital technologies, he is wondering if the use of digital portals could potentially enhance the cancer patients’ quality of life and health outcomes.

Steven Ouellet

Patient Partner

After completing two bachelor’s degrees (in philosophy and industrial relations),...

Simon Décary

Position: Faculté de médecine et des sciences de la santé, Université de Sherbrooke
Email: simon.decary@usherbrooke.ca

Simon Décary

Faculté de médecine et des sciences de la santé, Université de Sherbrooke

Project lead picture

Maxime Sasseville

Position: Université Laval
Email: maxime.sasseville@fsi.ulaval.ca

Maxime Sasseville is an adjunct professor in nursing sciences at Université Laval and researcher at the VITAM research centre in Québec, Canada. He has a PhD in health sciences research from Université de Sherbrooke and a postdoc from Université Laval in digital measurement and interventions. He has obtained multiple prizes and recognition for the quality of his knowledge translation products and implications. He is part of multiple research teams and endeavors for his skills and expertise in clinical measurement and evaluation, digital health interventions and applied AI to health interventions. He is a TUTOR-PHC alumni from 2015-2016. His research interest focus on patient-reported outcomes, digital implementation of outcome measures, psychometrics and multimorbidity.

Maxime Sasseville

Université Laval

Maxime Sasseville is an adjunct professor in nursing sciences at...

Annie LeBlanc

Position: Full Professor, Université Laval
Email: annie.leblanc@fmed.ulaval.ca

Annie LeBlanc, Ph.D., is a full professor in the Department of Family Medicine and Emergency Medicine at the Faculty of Medicine of Université Laval and a researcher at VITAM Sustainable Health Research Center. She is the Scientific Director of PASSERELLE, the national training entity of the Strategy for Patient-Oriented Research (SPOR) dedicated to inclusively and collectively developing, supporting, and maintaining scientific and practical capacities in patient-oriented research in Canada. She also holds a Canada Research Chair in Knowledge Mobilization and Integration in Practice. Her expertise focuses on mobilizing evidence within the healthcare system, advancing research methods and practices in real-world care contexts, and capacity building to optimize healthcare delivery while providing rapid and significant benefits for patients.

Annie LeBlanc, Ph. D., est professeure titulaire au Département de médecine de famille et de médecine d’urgence de la Faculté de médecine de l’Université Laval et chercheuse à VITAM Centre de recherche en santé durable. Elle est Directrice scientifique de PASSERELLE l’Entité nationale de formation de la Stratégie de recherche axée sur les patient.e.s (SRAP) dédiée à développer, soutenir et maintenir de manière inclusive et collective les capacités scientifiques et pratiques en recherche axée sur les patient.e.s au Canada. Elle est également titulaire de la Chaire de recherche du Canada en mobilisation et intégration des connaissances en pratique. Son expertise porte sur la mobilisation des données probantes au sein du système de soins de santé, l’avancement des méthodes et pratiques de la recherche dans un contexte réel de soins, et le développement des capacités dans l’optique d’optimiser la prestation de soins de santé tout en apportant des bénéfices rapides et significatifs pour les patient.e.s.

Annie LeBlanc

Full Professor, Université Laval

Annie LeBlanc, Ph.D., is a full professor in the Department...

 

 

Project Outputs

In Progress