Pratiques de soins tenant compte des traumatismes pour soutenir les proches aidants d’enfants atteints de maladies graves

Pratiques de soins tenant compte des traumatismes pour soutenir les proches aidants d’enfants atteints de maladies graves – Revue systématique

Statut du projet: En cours

Utilisateur(s) des connaissances

Patients partenaires et membres du public

Patient/Public Partner(s)

Carmen Carriere

Project Trainee(s)

Alicia Kilfoy

Collaborator(s)

Aimee Hildenbrand, Esther Lee

Source(s) de financement

Instituts de recherche en santé du Canada (IRSC), dans le cadre de l’Alliance pour des données probantes de la Stratégie de recherche axée sur le patient (SRAP)

Objectif du projet

Résumer la littérature sur les retombées des services de soins tenant compte des traumatismes pour la prévention et la gestion du stress traumatique et des problèmes connexes chez les proches aidants d’enfants atteints d’une maladie limitant l’espérance de vie.

Approche de recherche

Revue systématique

Responsables du projet

BC Pomeroy

Position: Patient Partner, BC SUPPORT Unit
Email: bcpomeroy1@gmail.com

BC Pomeroy is a Queer Researcher, an Award-Winning Patient Public Engagement Specialist, and an uninvited settler-person on the shared, traditional, ancestral, and unceded territories of the Snuneymuxw (snuh-nay-moe) territory also known as Gabriola Island, British Columbia. BC has a particular interest in Justice, Equity, Diversity, and Inclusion (JEDI+) and has co-developed a Trauma & Resiliency Informed Practice program for Research and Evaluation; a strength-based approach to Patient-Oriented Research.  They sit on the board of Health Quality BC Oversight & Advisory Council, Strategy for Patient-Oriented Research Evidence Alliance (SPOR EA), and Canadian Association for Health Services and Policy (CAHSPR).

BC Pomeroy

Patient Partner, BC SUPPORT Unit

BC Pomeroy is a Queer Researcher, an Award-Winning Patient Public…

Lindsay Jibb

Position: Scientist, The Hospital for Sick Children
Email: Lindsay.jibb@sickkids.ca

Dr. Lindsay Jibb holds the Signy Hildur Eaton Chair in Pediatric Nursing Research at the Hospital for Sick Children and the University of Toronto and is a Certified Pediatric Hematology/Oncology Nurse. Lindsay’s research program is broadly focused on enhancing quality of life and improving psychosocial care for children, adolescents, and young adults with cancer and their families with focus on: user-centered development and evaluation of digital health technologies for symptom management; interventions to empower and support the health of family caregivers of children with cancer; and child with cancer- and caregiver-oriented research priority identification and engagement in research.

Lindsay Jibb

Scientist, The Hospital for Sick Children

Dr. Lindsay Jibb holds the Signy Hildur Eaton Chair in…

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