Résultats rapportés par les patients et besoins des enfants amputés suite à un cancer et de leurs proches aidants – Examen de la portée dirigé par des proches aidants
Statut du projet: En cours
Utilisateur(s) des connaissances
Patients partenaires et membres du public
Patient/Public Partner(s)
Erica Deans
Project Trainee(s)
Rachel Hamilton
Source(s) de financement
Instituts de recherche en santé du Canada (IRSC), dans le cadre de l’Alliance pour des données probantes de la Stratégie de recherche axée sur le patient (SRAP)
Objectif du projet
Résumer la littérature sur les résultats rapportés par les patients et les besoins des personnes ayant subi une amputation liée à un cancer infantile et de leurs proches aidants afin de cerner les lacunes actuelles dans les connaissances sur cette population et de formuler des recommandations pour les futures recherches dans ce domaine.
Approche de recherche
Examen de la portée
Responsables du projet
Leah Deans
Leah Deans is the mother to a pediatric cancer survivor. Her daughter was diagnosed with Osteosarcoma of her upper right humerus at the age of 10 years. She underwent intensive rounds of chemotherapy, a full right arm disarticulation amputation, a coma, etc.
Her daughter has survived all of this and much, much more. Currently, her daughter is of 19 years of age, with no recurrence, but the struggles with mental health have been enormous.
Leah Deans and her daughter are excited to be a part of the 2023 patient-driven projects and she feels that research is highly needed in this area.
Leah Deans
Patient Partner
Leah Deans is the mother to a pediatric cancer survivor….
Lindsay Jibb
Dr. Lindsay Jibb holds the Signy Hildur Eaton Chair in Pediatric Nursing Research at the Hospital for Sick Children and the University of Toronto and is a Certified Pediatric Hematology/Oncology Nurse. Lindsay’s research program is broadly focused on enhancing quality of life and improving psychosocial care for children, adolescents, and young adults with cancer and their families with focus on: user-centered development and evaluation of digital health technologies for symptom management; interventions to empower and support the health of family caregivers of children with cancer; and child with cancer- and caregiver-oriented research priority identification and engagement in research.
Lindsay Jibb
Scientist, The Hospital for Sick Children
Dr. Lindsay Jibb holds the Signy Hildur Eaton Chair in…
Résultats des projets
En cours
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