Ressources pour la communication de la nature de la douleur chronique

Outils permettant aux patients de décrire leur douleur – Examen de la portée

Statut du projet: En cours

Utilisateur(s) des connaissances

Patients partenaires et membres du public

Patient/Public Partner(s)

Christy Faraher-Amidon

Project Trainee(s)

Codie Primeau, Maribeth Gelisanga

Source(s) de financement

Instituts de recherche en santé du Canada (IRSC), dans le cadre de l’Alliance pour des données probantes de la Stratégie de recherche axée sur le patient (SRAP)

Objectif du projet

Résumer les données probantes sur les ressources (p. ex. guides et outils) permettant aux personnes atteintes de douleur chronique de communiquer avec les professionnels de la santé au sujet de la nature de leur douleur.

Approche de recherche

Examen de la portée

Responsables du projet

Headshot of Kristie Nicols

Kristie Nicol

Position: Patient Partner

Kristie combines her science, GIS, and technical communication backgrounds to tell stories with visuals and to design accessible science content. Since 2006, Kristie has received many complex chronic health diagnoses, with chronic pain being a common thread. Her life with complex chronic health conditions guides her word choices and design decisions to support and empower users. Kristie’s experiences drive her involvement as an active patient partner, educator, and mentor. She uses her words to connect others to her pain, grief, and joy. Her curiosity and love of life and nature is her daily motivation to keep learning.

Kristie Nicol

Patient Partner

Kristie combines her science, GIS, and technical communication backgrounds to…

Linda Li

Position: University of British Columbia, Arthritis Research Canada, BC SUPPORT Unit
Email: lli@arthritisresearch.ca

Dr. Linda Li is Professor and Harold Robinson/Arthritis Society Chair in Arthritic Diseases at the Department of Physical Therapy, University of British Columbia and holds a Canada Research Chair in Patient-oriented Knowledge Translation. She is also a senior scientist at Arthritis Research Canada where she leads the Arthritis & Implementation Science Program (https://arthritis.rehab.med.ubc.ca/). Her research focuses on the integration of wearables and apps to support health professionals in promoting physical activity and chronic disease self-management. Her work in implementation science includes studying strategies for engaging people with lived experiences in the research process. Dr. Li is a recipient of the American College of Rheumatology – Association of Rheumatology Professionals (ARP) Distinguished Scholar Award (2015) and the ARP Distinguished Educator Award (2022), recognizing her leadership in both arthritis research and education. In 2019, she was inducted as Fellow of the Canadian Academy of Health Sciences.

Linda Li

University of British Columbia, Arthritis Research Canada, BC SUPPORT Unit

Dr. Linda Li is Professor and Harold Robinson/Arthritis Society Chair…

 

Résultats des projets

En cours

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