Guideline Development for Patient Engagement in Artificial Intelligence Health Research

Principal Applicant
Jillian Macklin
Supervisor/Mentor Dr. Andrew Pinto
Academic Institution University of Toronto
Project Title Exploring multiple perspectives on how patients can and should be involved in the development of guidelines for patient engagement in artificial intelligence (AI) health research
Funding Duration 2021-2022
Award Value $10,000
Proposed Method/Science Qualitative Study – Focus Group Interviews
Project Summary Patients are often identified as key stakeholders in the design of AI healthcare applications. However, the extent and method of patient engagement in AI health research has not been previously studied, and currently no guidelines exist. In order for patients to have meaningful participation in the eventual development of guidelines for patient engagement in AI health research, we must thoroughly understand what methods are best suited for engagement in the first place. This exploratory qualitative study seeks to understand, from multiple perspectives, the most effective, feasible, and preferred method to engage patients in the development of guidelines for patient engagement in AI health research.
About the Applicant Jillian Macklin completed her Bachelor of Medical Science at Western University and her Master of Science in Laboratory Medicine and Pathobiology at University of Toronto. She is now a combined MD/PhD student at University of Toronto, currently pursuing her PhD in Health Services Research at the Institute for Health Policy, Management, and Evaluation in the areas of community-based research, technology co-design, and ethical artificial intelligence. Jillian is a Vanier Scholar and a graduate fellow at the Schwartz Reisman Institute.

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